I started this post this morning and then was sidetracked by Gavin’s meltdown. 

Gavin had yet another seizure early this morning. Clearly the depakote isn’t working well but at the moment,  we can’t change his meds because of the autonomic testing this week. 

Neurology is concerned that any changes will further muddy the water and make things worse.

All we have to do is make it through to Friday and adjustments will be made at his EEG. I know I make that sound easy,  but the reality is anything but. Gavin will be off the only meds keeping is blood pressure from crashing for the next 72 hours,  in order to have this autonomic testing done.

God only knows how that’s going to go. I do know that I’m going to be quite nervous until we get through this.

**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.