One of growing concerns is for Gavin. As you know, Gavin suffers from CVID or Common Variable Immunodeficiency. His immune system is compromised and he requires IVIG Infusions twice a week in order to not get sick. For whatever reason, his supplies never showed up this week and I can’t get through to the pharmacy to find out why. It’s a specialty pharmacy, so it’s challenging to get through anyway.

I have no idea what’s going on and of all the times that this could happen, you literally couldn’t pick a worse one. Gavin is immunocompromised and we’re living through a fucking pandemic. That puts him at very high risk. Now he doesn’t have his medication that provides him with a temporary immune system.

In the morning, I need to get answers as to why this is happening and when it’s going to be fixed. This is simply too important to let go.

To make things even more challenging, Lizze and I have been talking and we think it might be best to pull Gavin off the Clozapine. It’s an insanely tightly controlled antipsychotic for the treatment of Schizophrenia. It requires blood work before each refill and there is no way around that.

Considering all that’s going on around us, and Gavin being immunocompromised, I cannot justify taking him to the lab to have his blood taken, just to refill a non-lifesaving medication. I felt that way before knowing his infusion medication would be in limbo. Now I can’t see putting him in that much risk. Lizze and I decided that I would speak with his doctor and find out what we should do. We’re leaning towards removing the Clozapine but we’re waiting to see what his doctor recommends.