The day has been long and frustrating. First, I want to share some good news. I really want to refocus on finding the silver lining in each day.
Gavin did his own IVIG Infusion today for the first time in a long time. His infusion went off without a hitch and without any leaking. Gavin came down the stairs afterwards and said "Dad, I was really lucky today because my infusion didn't leak." I looked at him, made him walk back upstairs and start over. This time, however, I wanted him to say "Dad, I did a great job with my infusion and it finished without leaking."
The reason for me doing this was to reframe how he views what happened. Rather than just think he was lucky, I wanted to help him build his confidence and recognize that his infusion didn't leak because he did a really good job.
When Gavin came down the stairs the second time, he had a big smile on his face and I could see that he felt pretty good after we reframed things for him.
While we're on the topic of Gavin's IVIG Infusions, we had a hickup with this month's delivery. Apparently, his prescription had run out and they were unable to connect with his doctor to get it refilled in time. I followed up with his doctor this morning and they have already sent in his refill. I simply need to wait for the supply company to make the delivery.
This is good news or at the very least, the silver lining for today.
The less pleasant news centers around Emmett and school. I spoke with the principal again today to gain a better understanding of our options. Apparently, home instruction may not be a viable option. As a result, I cancled the meeting for Tuesday morning. What I've decided to do was meet with Dr. Pattie on Tuesday night and come up with a few ideas of how to help Emmett get back into school. After that, I'll take the new ideas to the school and then have something to discuss. The principal agreed and I called Emmett's mom to invite her to meet with myself and Dr. Pattie on Tuesday night.
This is going to require all hands on deck because there are considerable obstacles we need to overcome. I'm really stressed out because one of the options is withdrawing him from school all together and home school him. That responsibility would fall squarely on my shoulders and while I would gladly do it if it's deemed necessary, but it's going to add a great deal more stress to my already overwhelming life.
I'm hoping to get through this tomorrow, after coming up with some workable ideas.
