I sent him back upstairs to finish shaving and explained that he needs to shave everything if he’s shaving his chin. We went back upstairs, hitting himself along the way because he needed to be reminded to finish shaving.
He came back down five minutes later having only shaved his mustache and leaving the rest of his beard. I sent him back up a second time and he intensified his attacks to his own body.
He came back down about three minutes later, having shaved his cheeks but leaving his neck. I had to send him back a third time to finish the job. This time he was really upset with himself.
He’s eighteen years old and I had to send him back to finish shaving three or four times in a row. If I hadn’t been so busy getting the kids ready and trying to get out the door, I would have walked him through it, step by step.
It’s this kind of thing that shows up in almost every area of his life and it’s so absolutely exhausting for me as a parent. I love Gavin unconditionally but at the same time, knowing that I will have to this until the day I die is overwhelming, demoralizing and frankly, terrifying. Knowing that it’s only going to get worse over time is beyond my ability to articulate.
Where was Lizze that she wasn’t able to get the other boys ready so you could divide and conquer and help Gavin? Also, would it have helped if you had said “go shave all the hair off your face” or has his comprehension slipped along with his other faculties?
Lizze and I were trying to get ready and get the boys ready. Elliott was freaking out because he needed shots today and we were running behind. Also, I did tell him to shave all the hair off his face. I don’t know what the problem is for sure but I fear you’re correct about the comprehension.
I have a feeling that this is something you would have gotten a wry amusement from before, or maybe even laughed at outright. I mean, why would you waste any time or emotion AT ALL on whether an 18 year old had weird facial hair? (They just do. All of them. Some on purpose.) Sometimes, under enough stress, it’s hard to separate the small stuff from the big stuff. I’m worried about you.
Hey Dot,
There’s a few reasons for addressing this with Gavin. This wasn’t just a case of weird facial hair. I don’t care about that. This was the kind of thing that if you saw it, you knew something was wrong. It’s important that Gavin pay attention to these things in order to practice good hygiene. We also aren’t looking to allow Gavin to be put in a position where some idiot will say something to him and create a problem. It’s happened before and Gavin deals with enough as it is.
The other part is that Gavin has to be able to follow simple instructions. Truthfully, and I told him this as well. I don’t care that he makes mistakes. Everyone makes mistakes and I make more than most. What I do care about is how he handles making a mistake. He can’t get angry and begin hitting himself because he makes a mistake. That’s not acceptable behavior and it can escalate very easily from that. That’s where I was coming from with this whole thing.
At the same time, it’s absolutely overwhelming to have to do this with everything in his life. It’s exhausting and I know I will be doing this for the rest of my life. That can be difficult to think about sometimes.
The main point I wanted to make was that I think that you would have laughed about this a year ago. Or two years. Which leads me to think you are in a darker place now. It’s worrisome and I worry about you. That’s all.
It’s not that I can’t laugh about it or that I’m in a darker place. Maybe I am. In my view it’s that the volume of things I’m dealing with keeps increasing and my resources aren’t. Does that make sense.?
I really appreciate the concern Dot. Truthfully, it’s a combination of things. I’m overwhelmed by lots of things and I’m also in a weird place because I turn 40 in a few weeks. ☺
It sounds like motor planning. A lot of people with autism have difficulty. My adult son still needs to have my hubby help him shave. Actually I’m trying to teach hubby to not do it all for him. Have you tried a social story? It’s really a step by step story with pics & words describing an event which is read, often describing feelings of anger or frustration the person with autism has. You have a lot of events in your life, but the common thread is a need to describe feelings and how appropriately to deal with them. Titles of stories could be ” When I shave myself” “When I go to the Dr. and need a shot” As a speech therapist, I just made up alot of stories for events like “When we have a fire drill”. Carol Gray is the guru of social stories.
Great advice. Thank you Sandra… ☺
So can I ask, why was it a big deal he only shaved the part that was bothering him? Besides looking silly maybe. That seems like a pick your own battles thing
I get your point but we were going out and hygiene is something we are really trying to work on with him. He needs to be aware of these things and be able to take care of himself, on basic levels. Does that make sense?
Yes, it does.
Thanks. ☺