So Gavin's medication arrived. We went through the newly received supplies and figured out how to draw up the new solution. Previously, we were using 3, 10cc vials for a total of 30cc's of solution.
With the new medication, there are 2 vials total. The first vial contains 10cc's and the second contains 5cc's. That makes for a total of 15cc's and exactly half of the solution he had previously been infusing.
The total amount of actual medication remains consist at 3 grams.
With that out of the way, the bad news is that Gavin likely won't be able to do these on his own, at least for now.
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I realize he's a bit out of practice but he made mistakes, the biggest of which wasted about 5cc's of the medication. He wasn't even aware he had done it, so it isn't even really a teaching moment.
He was freaking out the entire time and not paying attention to the things he must pay attention to.
We've been seeing an overall trend of this kind of behavior lately and it's not isolated to this one instance. It's been a little bit since he's done an infusion but I worry that the overall decline in ability is a major contributing factor here.
If it was just him being out of practice, we coukd simply practice and expect to see some positive movement forward. I just don't think that's the case but I'm also hoping I'm wrong.
We will still practice and do what we can to recover those skills because aside from giving up, that's the only thing we can do.
I'm really frustrated because I didn't watch him more closely when he was putting things together. I'm also frustrated because he doesn't even recognize what he did wrong. He simply doesn't see it.
I'm so grateful that we have his meds back but it's been a frustrating experience getting him his infusion today. We'll just have to keep plugging away and backtrack when necessary.Sometime you have to go backwards to move forwards.
