Recently, Emmett has been struggling a great deal more with eating.
If you’ve followed our story for awhile, you might recall that we have an enormous challenge when it comes to Emmett and eating. He’s extremely sensory oriented and struggles with things like food, clothes, noise and shitload of anxiety. The anxiety serves to make everything worse.
Anyway, Emmett has a very small menu of foods he’ll eat, and that makes it challenging to feed him.
He’s very sensitive to things like taste, smell, color, shape, packaging, presentation and imperfections. It’s not uncommon for me to have to remake something a few times because something about it wasn’t right.
Recently, Emmett has begun saying things like, this doesn’t taste right. The problem is, what doesn’t taste right, happens to be one of the few things he’s historically eaten.
Sed rate doubled. I don’t think its sensory. Even though doc said all ok I’ll bet he’s brewing something making him have a bad taste in his mouth it’s not the foods themselves. Only because it’s spread over multiple foods.
Here’s the thing. Emmett has a rare fever disorder called PFAPA. Traditionally, he’d run a high grade fever for about 10 days but not actually be sick. He had surgery when he was younger to try and help with this debilitating condition. The high grade fevers were reduced but new symptoms emerged.
Now he breaks out in painful mouth sores, inflamed joints and major mood swings.
Every once in awhile, his symptoms shift and new symptoms arise.
You may be absolutely correct in your assertion but I suspect the thing brewing, is a new symptom of his fever cycles.
@AspieMum 2/2 The ingredients haven’t changed, so he must have! That’s all I can think of!
@AspieMum Could it be he’s going through a hormone phase? My son goes off foods he’s eaten for year… https://t.co/vSL2YiE228
It’s entirely possible but to my knowledge, nothing like that has happened…
Sed rate doubled. I don’t think its sensory. Even though doc said all ok I’ll bet he’s brewing something making him have a bad taste in his mouth it’s not the foods themselves. Only because it’s spread over multiple foods.
Here’s the thing. Emmett has a rare fever disorder called PFAPA. Traditionally, he’d run a high grade fever for about 10 days but not actually be sick. He had surgery when he was younger to try and help with this debilitating condition. The high grade fevers were reduced but new symptoms emerged.
Now he breaks out in painful mouth sores, inflamed joints and major mood swings.
Every once in awhile, his symptoms shift and new symptoms arise.
You may be absolutely correct in your assertion but I suspect the thing brewing, is a new symptom of his fever cycles.
Has he changed his meds? Is he brushing his teeth before meals? Could there be subtle ingredient changes in what you’re buying for him?
His meds haven’t changed in a long time and while there may be more subtle things I’m not aware of, he’s not brushing his teeth before eating…
The food itself hasn’t changed as well..
Yeah. Long colds, prolonged allergy seasons, and long fevers have done it. Hormonal shifts have mad… https://t.co/5rRFF19X9s
Thanks Tara. That’s what I was thinking as well.
My boys are very sensitive to the texture of foods especially my oldest who is also very sensitive… https://t.co/dBIjdAM3MK
I can absolutely relate to this. We struggle with the same thing.
I do know that change in meds, or long viruses, or high fever sometimes rerouted food likes & disli… https://t.co/bHPWSzbl9w
@AspieMum 2/2 The ingredients haven’t changed, so he must have! That’s all I can think of!
@AspieMum Could it be he’s going through a hormone phase? My son goes off foods he’s eaten for year… https://t.co/vSL2YiE228
It’s entirely possible but to my knowledge, nothing like that has happened…
Has he changed his meds? Is he brushing his teeth before meals? Could there be subtle ingredient changes in what you’re buying for him?
His meds haven’t changed in a long time and while there may be more subtle things I’m not aware of, he’s not brushing his teeth before eating…
The food itself hasn’t changed as well..
Yeah. Long colds, prolonged allergy seasons, and long fevers have done it. Hormonal shifts have mad… https://t.co/5rRFF19X9s
Thanks Tara. That’s what I was thinking as well.
My boys are very sensitive to the texture of foods especially my oldest who is also very sensitive… https://t.co/dBIjdAM3MK
I can absolutely relate to this. We struggle with the same thing.
I do know that change in meds, or long viruses, or high fever sometimes rerouted food likes & disli… https://t.co/bHPWSzbl9w