I mentioned in an earlier post that Gavin has some problems with his IVIG infusion this morning. It was actually more of a problem during his infusion and not really with the infusion itself. 

Normally, he sits in the same place on the same couch and plays the same game on the Xbox or his tablet, to help pass the time.  

Today however, his bladder issues hit him really hard. He was unable to sit down without having to get up and race to the bathroom. 

It got so bad that we had him stay in his bedroom for the duration because his room is right across from the bathroom and he wouldn’t have to keep taking the steps. 

That threw him off because he’s very particular about the process and routine involved with his twice a week infusions. To his credit, he took it in stride. The only thing that had him upset was that he had to keep going to the bathroom. 

Thankfully, he’s got an upcoming appointment with his urologist at the Cleveland Clinic.