Either way, this demonstrates one of the most difficult parts of parenting Gavin. He’s simply not a reliable source of information, and that sucks. That one simple fact makes managing all he has going on an absolute nightmare because unless we witness an event, all we have to go on is what he tells us. 

It’s possible that he peed blood this morning but then everything had cleared up by the time we got checked out. He peed once before we left for the hospital and it did look a little brownish to me, but when he peed at the hospital, it was perfectly normal. 

The impression I got from the ER doctor was if this had happened, there should be something detectable. There was zero sign of infection or blood, and so now we’re left trying to figure out what the fuck happened because it matters going forward.  

The thought has also crossed my mind that maybe he was confused and didn’t know where it came from because he always sits to use the bathroom. 

I feel like every nerve in my body has been filleted covered in salt and left exposed. I’m frustrated, overwhelmed and part of me is angry because this was scary for us and nothing may have happened in the first place. As far as Gavin was concerned, he was just glad he didn’t need to have bloodwork done. 

With all the incredibly implausible health issues that Gavin has, things like this come up and they scare the shit out of Lizze and I. I can’t even begin to explain what we go through every time something like this happens. 

I don’t think for even a second that Gavin lied to us. He’s just very limited in his ability to provide us with reliable anything resembling reliable information, and while he’s doing the best he can, it leaves us in these impossible situations like this.