Like the title says, it's been a heartbreaking day for Gavin.
I can't say enough about Gavin. He's such a brave kid and deals with more than most will in a lifetime and yet he *never* complains.
Gavin had his IVIG infusion this morning, as per the norm.
<img src="https://lxnxuovarpoeyuzaxuet.supabase.co/storage/v1/object/public/blog-images/inline/2015/10/templates-Recovered-2.png" alt="" class="inline-block max-w-full h-auto rounded-xl my-4" loading="lazy" />We have brand new tubing which is supposed to significantly expedite the process and yet for the second time this week, his infusion has been an absolute disaster.
I started Gavin's infusion about 9am this morning and as of 2:30 PM, he still has over 13cc's left to infuse. We are almost 6 hours into the process and it's simply not working.
In an effort to fix whatever the problem is, I've requested a replacement pump be sent out.
I also spoke with his immunologist about this today and we are suspecting that there is simply too much scare tissue in his belly. We have to move to a different area of his body and Gavin's is not happy.
Beginning on Monday, we will begin infusing his IVIG into his thigh.
I wanted to pull the needles and finish the infusion in his leg but Gavin wouldn't even consider it.
Please keep Gavin in your thoughts as I get this situation resolved.
