After a bit of confusion and subsequent improvisation, we’re up and running with Gavin first subcutaneous IVIG Infusion. The biggest hangup we had this afternoon was that he didn’t have any numbing medication.
Gavin has done really well so far. He did start to crash at the beginning but then stabilized.
The nurse that came out to show us how to do this is awesome, as is the staff at Akron Children’s Hospital. The physical process of performing this procedure was pretty simple.
I actually did 2 of the 3 sites myself and Gavin said that he actually prefers this to the IV process.
We have about an hour or so left on the roughly 2 hour procedure. He’s sleeping from all the premedication and is looking forward to Chinese food on the way home.
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I hope all goes well. Took my son to the dr the other day and he wants to start the ivig and now waiting on insurance approval. Pray they approve as the oncologists and rhuemy dont know what else to do to help him get on track of his life. My son said he wasnt feeling well today, I knew before he said it as his cheeks get a splotchy red. i hope he feels better but there is nothing i can do
Way to go Gavin (and rob)!!!