Surviving the day as an #Autism parent

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  • Post last modified:November 13, 2013

Today has really not been too too bad of a day.  It was really long but  survivable.

As much as I would have liked to get a nap, that didn’t happen.  Somethings going on with Emmett and he keeps getting up in the middle of the night and climbing into bed with us. 

Sometimes, it’s bad dreams and other times he doesn’t know why he’s up. 

All I know for sure is that I’m not getting enough sleep at night and it’s killing me during the day.  I need as much energy as possible to make it through the day. Lately, I’ve been starting off at a deficit.

I had a few important phone calls to make this morning after getting the boys off to school. 

Lizze went to bed because she wasn’t doing well today.

She’s having a lot of nightmares again and between those and menopause, she has a really hard time sleeping at night. 

I had to pick up Elliott at school and take him to occupational therapy as well.  He did really well during his 45 minute session.  He listened and was in a much better place after therapy than he was before therapy.  He really, really needs this sensory input to sorta ground him.
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Emmett is in desperate need of occupational therapy as well, but unfortunately, he still has to wait a little while longer. 

I did find out while I was there with Elliott, that Gavin will be starting on Mondays for speech and OT. That’s something that he needs as well. 

Speaking of Gavin, he says that he had a good day today, but I’m not sure what that means.  His idea and my idea of what a good day is sometimes differs. I did what I said I was going to do and did not involve myself with his homework. 

Since I didn’t have to challenge him, Gavin had a pretty good afternoon at home. 

Poor Lizze went to bed really early tonight.  She’s absolutely not feeling well. To be more accurate, she’s miserable and so as I’m writing this on my phone (with one hand), I’m scratching her back and trying to help her to fall asleep.

I hope you are all experiencing a peaceful night. 

I’m gonna crash and try and get some sleep while I can. 

This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. 😉



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Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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Lost and Tired

reonyea you remember correctly.  🙂 He’s doing okay.  He just started back at OT a few weeks back.  Insurance had booted him because they said he was too old and not making enough progress.  🙁

Lost and Tired

Dwayne Murphy thanks.  To be honest, I’m worried about the teachers being on board.  We spoke with Dr. Pattie on Tuesday a day she agrees that he’s BSing us. Thanks again for the great advice.  🙂

reonyea

How’s Elliott’s muscle tone coming along? I seem to remember that he had spaghetti arms? Hope it’s improving with the OT 🙂

Dwayne Murphy

Hi Rob. Good job with not asking about Gavin’s homework. However, you should mentally prepare yourself for when his teachers may start contacting you about missing assignments. To stay on the right track, you’ll need to take the side of the teachers and impose the usual consequences since you’re sure now that this whole homework mess is the result of RAD.