I got a call from the Cleveland Clinic today about Gavin. They were actually returning my call from earlier. It's truly amazing how quickly the Cleveland Clinic can return a phone call. :-)
We discussed Gavin's new symptoms and the possibility of finding a doctor or clinic that can look at Gavin's chronic health issues as a whole.
I think it's important that we try and move beyond addressing things as individual health crises. What are the chances of one child having all of these major health issues and not having them all be somehow connected?
Anyway, they (the Cleveland Clinic) will be looking into finding any additional options.
They're also looking into whether or not Gavin can take Miralax without throwing off his fluid balance. I'm supposed to hear back sometime in the next day or so.
Fingers crossed for good news.....
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