Gavin’s only been home since lunchtime but already, my fears are being realized. 

Things for Gavin are worse than I realized. 

I’ve been monitoring Gavin’s heart rate, either through the monitor that syncs with my phone or his heart rate watch.

Gavin while sitting, had a heart rate of around 130/bpm. He simply stood up and walked around.  I’m talking just walking and nothing even remotely crazy.  His heart rate jumped to 150/bpm.

When I have him sit down and rest, it instantly drops to 80/bpm.

This is why it’s so important that he be watched so closely.  If not, things like this slip by without being detected until it’s too late. 

I’ll be honest, I’m really worried about this because there isn’t anything we can do but park him on the couch and let him watch TV.  I’m wondering about the rest of the school year as well.  I mean if walking is too strenuous, what the hell are we supposed to do?

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