Gavin in will be returning to see the neurologist in the morning. This is an epilepsy and Dysautonomia follow up.
While he hasn’t been officially diagnosed with Dysautonomia, we expect that to be soon. When he was admitted 2 weeks ago, that’s what they treated him for.
Tomorrow is a follow up from the EEG and the hospital stay. Hopefully, it will be uneventful and quick and painless.
I’m anxious to get to Cleveland on Thursday and to get this diagnosis under way. When we know for sure what we are dealing with, than we will be better prepared and perhaps have a treatment as well.
**Thanks for reading**
-Lost and Tired
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Rob what is that exactly that Gavin has? I send prayers to you and your family every day. You are an amazing man. I don't know where you get your strength from. God bless you and your family.