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You don't have to figure this out today

You just got the diagnosis, and you might be scared. I've been there, three times. Take a breath. Your child is still your child. This is the roadmap I didn't have.

Part 1 · The diagnosis you didn't expect

The things I wish someone had told me in that parking lot.

  1. 1

    Take a breath. Your child is still your child.

    The diagnosis didn't change who they are. It just helps you understand how they experience the world and what they need to thrive.

    Just diagnosed and scared? Read this
  2. 2

    Autism is a spectrum, not a line.

    It isn't mild to severe. Your child has their own profile of strengths and challenges. The label isn't a box they're locked in, it's a key that unlocks support.

    Learn what autism is

Part 2 · Adjusting to a new reality

When it all feels like too much, make it smaller.

  1. 3

    Take it five minutes at a time.

    When the whole day feels insurmountable, stop trying to survive the whole day. Break it into five-minute chunks. Make it through one, then the next. That counts as a win.

  2. 4

    Boundaries aren't selfish.

    They protect the energy you need to show up for your child. A boundary is about what you'll do, not what you hope someone else will do.

Part 3 · Moving forward

You can't pour from an empty cup. Here's how you keep going, and where you find your people.

  1. 5

    Start with self-care.

    It isn't selfish, it's how you protect your ability to keep showing up. Burnout builds slowly, so work small bits of care in early.

  2. 6

    Build your village.

    You're not meant to do this alone, and asking for help isn't failing. You don't have to build the whole village today. Start with one safe person, one group, one resource below.

Find what you need

Vetted tools, people, and organizations we trust. Filter by what you are facing right now.

What are you dealing with today?

Articles & Guides

16

Understanding Wandering in Autism

Why kids elope, the real risks, and prevention strategies that actually help.

Safety

Understanding Caregiver Burnout

How to spot caregiver burnout and recharge before you hit empty.

Caregiver Wellbeing

Creating a Sensory-Friendly Home

Practical ways to reduce sensory overwhelm at home.

Sensory

Why Kids Have Meltdowns After School

What after-school meltdowns are really about, and how to ease them.

MeltdownsSchool & IEP

Just Diagnosed and Scared? Start Here

A reassuring first read for the moment right after diagnosis.

Just Diagnosed

When Others Do Not Support the Diagnosis

What to do when family or friends do not accept your child's diagnosis.

Just DiagnosedCaregiver Wellbeing

Apps & Tools

3

Mightier

Clinically validated biofeedback games that teach kids to manage big emotions. Built by child psychologists at Boston Children's Hospital and Harvard Medical School.

Mightier has helped thousands of families reduce meltdowns and build lasting emotional skills.

MeltdownsSensoryCaregiver Wellbeing

VizyPlan

Visual scheduling and routine planning tools designed for neurodivergent families.

Purpose-built visual tools that help neurodivergent kids plan independently.

Daily RoutinesCommunication & Speech

Eleplan

Amanda Lukof

Planning and life-skills tools built for neurodivergent families.

Daily Routines

Books

9

So Your Child Was Just Diagnosed with Autism

Rob Gorski

My book for the parent who just got the news. Everything on this page comes from it.

Written from twenty-five years of parenting autistic kids, not from theory.

Just DiagnosedUnderstanding AutismCaregiver Wellbeing

The Unbreakable Boy

Affiliate

Scott LeRette

Scott LeRette's story of raising his son, later adapted into a feature film.

Caregiver WellbeingUnderstanding Autism

Uniquely Human

Affiliate

Barry M. Prizant, Ph.D.

Barry Prizant's case for understanding autistic behavior instead of trying to erase it. A perspective shift for a lot of parents.

Understanding Autism

From Struggle to Strength

Affiliate

Harry Psaros

Harry's account of raising his son Gus, from the earliest signs onward. Another autism dad who went and wrote it down.

Just DiagnosedCaregiver WellbeingUnderstanding Autism

The Gift of the Unexpected

Affiliate

Jillian Benfield

Jillian's book on the life you did not plan for, and finding it worth having anyway. She was on the show.

Just DiagnosedCaregiver Wellbeing

Doing It All

Affiliate

Whitney Casares, MD, MPH, FAAP

Dr. Casares on what happens when you over-function until there is nothing left of you. She is the pediatrician from our sleep episodes.

Caregiver Wellbeing

Podcasts

43

The Autism Dad Podcast

Rob Gorski

Honest conversations about autism parenting, from our family to yours.

Understanding AutismCaregiver Wellbeing

The Autism Consultant Podcast

Molly Johnson, M.Ed.

Molly's weekly show for parents, focused on the practical in-the-home things nobody hands you a manual for.

Potty TrainingDaily RoutinesMeltdowns

Nourishing Autism

Brittyn Coleman, MS, RDN/LD

Brittyn's podcast on feeding, nutrition, and the food fights that wear families down.

Eating & Nutrition

What Is an IEP?

The Autism Dad Podcast, S5E16

Start here if the word IEP still makes your stomach drop. Shelley Kenow explains what it is and what it's supposed to do for your child.

School & IEP

A Parent's Guide to Autism and Potty Training

The Autism Dad Podcast, S6E54

Molly Johnson walks through where to actually start with potty training, and why the usual advice doesn't fit our kids.

Potty TrainingDaily Routines

5 Tips for Potty Training Success

The Autism Dad Podcast, S5E50

Five concrete things to try, from a former autism teacher who coaches parents through this every day.

Potty TrainingDaily Routines

Blogs & Websites

5

The Autism Consultant

Molly Johnson, M.Ed.

Molly Johnson's practical, in-the-home coaching on potty training, transitions, and visual supports.

A former public school autism teacher. She gives parents specific things to try tonight.

Potty TrainingDaily RoutinesMeltdowns

Autism Dietitian

Brittyn Coleman, MS, RDN/LD

Brittyn Coleman's work on feeding, nutrition, and ARFID. The place I send parents who are stuck at the table.

A registered dietitian who specializes in autistic kids, and an autism sibling herself.

Eating & Nutrition

Finding Cooper's Voice

Kate Swenson

Kate Swenson writes honestly about raising a son with high support needs.

Caregiver WellbeingCommunication & Speech

The Autism Cafe

Eileen Lamb

Eileen Lamb writes as both an autism parent and an autistic adult.

Understanding AutismCaregiver Wellbeing

Modern Mommy Doc

Whitney Casares, MD, MPH

Dr. Whitney Casares on sleep, health, and keeping yourself upright while you parent.

SleepCaregiver WellbeingTherapies

Accounts to Follow

6

@theautismconsultant

Molly Johnson

Visual supports and daily-life strategies you can actually use the same day.

Potty TrainingDaily RoutinesMeltdowns

@autismdietitian

Brittyn Coleman

Feeding and nutrition help for autistic kids, in short and usable pieces.

Eating & Nutrition

@myarfidlife

Michelle Dorit

ARFID from the inside, which is the part most parents never get to hear.

Eating & Nutrition

Autism Parents United

Glenn Michael

Glenn Michael's community for autism parents who need somewhere to put it all down.

Caregiver Wellbeing

Jimmy Clare

Jimmy Clare

An autistic speaker and podcaster worth following if you want an autistic adult's perspective.

Understanding Autism

@findingcoopersvoice

Kate Swenson

Kate Swenson writes about high support needs autism without sanding the edges off it.

Caregiver WellbeingCommunication & Speech

Organizations

8

Autism Society of America

One of the country's oldest autism organizations, with local chapters and a national helpline.

Just DiagnosedUnderstanding Autism

Autistic Self Advocacy Network (ASAN)

Advocacy and plain-language resources led by autistic people themselves.

Understanding Autism

Akron Children's Hospital

Pediatric care and autism services across Northeast Ohio.

Therapies

Cleveland Clinic

Autism diagnosis and care through its Center for Autism.

TherapiesUnderstanding Autism

Autism Society of Greater Akron

Our local chapter. Family support, training, and community across Northeast Ohio.

The organization behind Aria's Angels, and one I work with directly.

Just DiagnosedCaregiver Wellbeing

Autism Science Foundation

Research funding and plain-language science for parents who want the evidence.

Understanding AutismTherapies

Support Groups

1

Special Needs Parenting Support Group

Our Facebook community where autism parents connect, ask questions, and find encouragement.

Caregiver WellbeingJust Diagnosed

Products & Services

3

AngelSense

Affiliate

A GPS tracker designed for children with special needs. Real-time location and safety alerts.

Safety

Safe Place Bedding

Affiliate

Safety beds and enclosures for children with autism at risk of injury during sleep.

SafetySleep

Bark Phone

A kid-safe phone with built-in monitoring and parental controls.

Safety

Some links are affiliate links. We only recommend tools our family uses and trusts, and a small commission never changes what makes this list.

And as you find your footing, two things to carry with you.

  1. 7

    Celebrate every win.

    In autism parenting, the wins look ordinary to the world and extraordinary to us. Both are true. Make celebrating a practice. Write them down. On the hard days, that record matters more than you'd expect.

  2. 8

    Hope is something you build.

    Hope isn't something you wait for. It grows through the hard days you survive. You don't find it, you build it.

Every step here comes from So Your Child Was Just Diagnosed with Autism

This page is the book's living companion, kept current so the help you need is never out of date.

Learn about the book